At the beginning of June I went away to Catania, Sicily with one of my best friends for a few days. It really was the perfect trip to just relax and eat some amazing food! In all honesty we chose Catania quite randomly, I was just looking through Airbnb to see what was reasonably priced for that time of year and stumbled across Catania. Now if you’re the kind of person who likes to go away and constantly do things, this may not be the city for you. I would 100% recommend a day trip if you’re nearby because it is still a gorgeous city, however it really isn’t that touristy.
One of the main things I liked about Catania is it actually felt like a very authentic Italian experience, although most people understood English, a lot of the time we were spoken to in Italian which made the trip a lot more interesting. Honestly, I really enjoyed the peacefulness of the city. I was actually able to walk around the whole time, it was nice that we had time do everything we wanted to without compromising on anything. One of my best pieces of advice I have for travelling, is make sure you like where you’re staying. You don’t have to spend a lot of money to find a comfortable place to stay, but I know with my CFS/ME I spend a lot of time relaxing and resting there.
In our Airbnb, we had a great outdoor space to chill in, we must have spent most of our time away there. It was so nice after being out and getting tired to come back and be able to rest without feeling like I was spending all my time in bed. The trip was the perfect way to just relax after finishing uni. I learnt a lot during this trip, I had a really hard experience with a group of passengers on our flight making me feel uncomfortable for having special assistance. Fortunately, it didn’t put a dampener on our trip but I hope in the future people are more accepting of invisible illnesses, and I know I am less likely to be tolerant of discriminatory behaviour.
See you next time pals x
On my CFS/ME course they use the term setbacks to talk about anything that creates struggles for us when managing our illness. To a certain extent, the past month’s events have been a huge setback in my illness, I have become significantly more poorly, but it has been really hard judging when to let myself feel sad and grieve, or when it is impacting my illness and making me feel worse.
In my previous post I spoke about positivity and how important it is to remain optimistic with this illness, it serves no value to feel sorry for myself. What I’m really struggling with at the moment is remembering that in the past year I’ve lost two people very close to me, anyone without an illness would be struggling to and I have to be kind to myself because I have to manage an illness and manage bereavement.
My plan for the next few weeks is to put myself first as much as possible and put my illness back at the top of my priorities. It’s okay to be a bit selfish in these circumstances. If someone I knew was in my position, I’d be telling them to put themselves first, so I should take my own advice.
See you next time pals x
It’s been a hot minute since I wrote a blog post as I sadly lost my Grandma at the end of October, so needed some time to process and recoup. I don’t want this to seem selfish but obviously this has taken a huge toll on my fatigue, it doesn’t take a medical professional to connect stress to illnesses, I have seen a huge decline in my health the past few weeks. On the other hand, I think it’s important to remember that there is a reason for that, I’d come so far with managing my fatigue and was actually going through a very healthy patch, there’s no reason I can’t go back to that.
One of the biggest things I’ve learnt with CFS/ME is how vital your mindset is, now I’m not saying I never have days where I don’t feel down about being ill, I just know how important it is to keep positive. I count myself lucky that I am able to keep motivated to get as well as I can, it would be so easy to just settle and believe that I’m always going to be this ill. It took me a long time to get to this place, a huge part of it was accepting that I am chronically ill.
I pride myself in being optimistic, particularly as someone who has suffered with depression for years, it’s never prevented me from being hopeful for better. I will put my hands up and say I am guilty of getting easily frustrated when people are pessimistic, I’ve just never seen a need for it. I understand being realistic however there’s a difference between the two, it must be so draining to constantly think negatively. Maybe it’s because I have spent years teaching myself to separate the negative thoughts that come with depression, so therefore don’t understand why someone would voluntarily always take the cynical side of things.
I hope this post will help some people that find themselves stuck in negative thoughts, even I find it draining when someone is constantly moaning so goodness knows how they feel. It’s okay to be sad and to moan but you have to be able to pick yourself up and focus on what is really going to help you. A little positivity can go a long way.
See you next time pals x